People with inflammatory bowel disease (IBD), including Crohn’s disease, ulcerative colitis and other forms of IBD, can now join the IBD Registry online. Co-designed with their Patient Advisory Group, the new system enables people with IBD to join the IBD Registry, with the option of consenting to being contacted about upcoming research projects.
The IBD Registry collects health data from NHS hospitals and analyses this information to help improve services for people with IBD, and to support new research into these conditions. By joining the Registry, people with IBD can also support innovative research through Gut Reaction, a unique, secure data resource designed to facilitate academic and industry research in IBD.
Linking IBD Registry data with lifestyle, research and genomic data from more than 34,600 consented IBD patients in the NIHR BioResource, real-world health record data from participating NHS Hospitals, and other national datasets can provide a powerful research resource to help find new ways of diagnosing, treating or preventing IBD. Read more about how Gut Reaction securely links data to support research designed to benefit those living with IBD here.
