News
Gut Reaction wins award for patient engagement
Our Inflammatory Bowel Disease hub, Gut Reaction, has won the Public and Patient Involvement and Engagement Award at Health Data Research UK’s annual awards.
How Gut Reaction is evolving to support better understanding and treatments for Crohn’s and Colitis
Gut Reaction is a research project that brings together health data from thousands of people living with Crohn’s and Colitis across the UK. It means that research can be carried out faster, using large sets of data.
Getting the balance right: how do we support research and maintain patient privacy?
Research using information from health records has the potential to benefit patients and the wider NHS, but to protect privacy strict controls are necessary. In this article, Neil Walker, Chief Data Officer for Gut Reaction and Clinical Bioinformatics and Statistical...
Gut Reaction – the doctor’s perspective: recording now available!
For anyone who was unable to attend our live, interactive webinar on Monday 11 July 2022, the recording is now available.
With patients, for patients: co-production in the Gut Reaction Hub
Following our successful final funding assessment with HDR UK, Sarah Sleet, CEO of Crohn's & Colitis UK and Patient Involvement and Engagement and Communications Workstream Executive Lead at Gut Reaction, reflects on the ongoing impact of people living with inflammat...
Thank you to everyone who supported our webinar!
We had a great audience for our webinar on Monday, and would like to thank everyone who contributed and supported us!
Two events in one day: our team shares Gut Reaction’s progress!
With team members showcasing Gut Reaction's work at the Milner Therapeutics Symposium and the HDR UK Building a legacy event, it's been an exciting week!
The Gut Reaction model: combining expertise and oversight in health data research
We met with some of the Gut Reaction team to chat about how Gut Reaction ensure that data is always kept safe and private, and only supports research that is acceptable to patients living with IBD.
Meet our team: Mark Avery, Operational Lead for Gut Reaction and Director of Health Informatics for Eastern AHSN and CUHP
Mark is Operational Lead for Gut Reaction; a role that involves all stages of the project, from developing the initial funding application for Gut Reaction to working alongside the data management teams, communications and our Patient Advisory Committee.
Join us for the Gut Reaction Patient Webinar Series!
Join a panel including doctors and patient representatives to find out the latest news on the Gut Reaction Hub. This is your chance to hear more about how we work with patients and healthcare providers to support studies designed to benefit the IBD community. Our pan...
Finding a balance between study feasibility and data security: the Gut Reaction Cohort Discovery Tool
Eleanor Hall, Gut Reaction Programme Manager, discusses Gut Reaction's ongoing work to define an acceptable and sustainable model for health data research, and the importance of our new Cohort Discovery Tool in this process
Meet our team: Rosanna Fennessy, Gut Reaction Patient Partner
Rosanna has been our Patient Partner from the start of Gut Reaction. As a member of our Gut Reaction Core Team and part of the Patient Advisory Committee (PAC), her experience and input is central to our work.
You can now join the IBD Registry online to support better treatment and care for people with IBD
People with inflammatory bowel disease (IBD), including Crohn’s disease, ulcerative colitis and other forms of IBD, can now join the IBD Registry online. Co-designed with their Patient Advisory Group, the new system enables people with IBD to join the IBD Registry, w...
Meet our team: Liz Dobson, CEO, IBD Registry
The IBD Registry holds more than 80,000 healthcare records from people living with inflammatory bowel disease (IBD), which includes Crohn’s disease, ulcerative colitis and other less common forms of IBD.
Could Gut Reaction data support your research?
Gut Reaction facilitates secure access to data sources for approved researchers, allowing innovative research designed to support the IBD community. Building on the consented information available in the NIHR BioResource, researchers can request a broad range ...
Gut Reaction – our journey in health data research: recording now available!
For anyone who was unable to attend our live, interactive webinar on 26 January 2022, the recording is now available. Featuring our Hub Director Professor John Bradley and Operations Director Mark Avery, we discussed why the Gut Reaction Health Data Research Hub for ...
Gut Reaction Patient and Public Review Group
Gut Reaction, working with Crohn’s & Colitis UK and NIHR BioResource, are looking for people to be part of a new Patient and Public Review Group. We are looking for people affected by Crohn’s or Colitis and lay members to join our new Patient and Public Review Gr...
Gut Reaction’s path to sustainability: our evolving collaborative model
Health data is a uniquely valuable resource for improving treatment and diagnostic options across a range of different illnesses. It’s use, however, also presents many challenges. Alongside the ethical and technological issues that accompany safe collection and stora...
A new era in inflammatory bowel disease innovation: the utility of health data research applicable for small and medium-sized enterprises
Following Gut Reaction’s successful virtual event for small and medium-sized enterprises (SMEs), Dr Louise Jopling – our Industry Collaboration and Sustainability Co-Executive Lead – reviews how partnerships with SMEs can lead to much-needed therapeutic b...
Join us for the Gut Reaction Patient Webinar Series!
Following the success of our first event, ‘Gut Reaction: our journey in heath data research’, tickets are now available for the next webinars in our new series. Join us on February 23rd, 10:30-12:00, to find out about the role that our Patient Advisory Co...
Join us for the first Gut Reaction live Webinar, ‘Gut Reaction: our journey in health data research’
Bookings are now open for the first Gut Reaction live Webinar, ‘Gut Reaction: our journey in health data research. Taking place on 26 January 2022, this free, interactive webinar is for patients and members of the public interested in health data research in inflamma...
Meet our team: Professor Miles Parkes
Prof Miles Parkes is Clinical and Research Collaboration Workstream Executive Lead at Gut Reaction. Here he talks about his role on Gut Reaction, and why improving diagnostic and treatment options for people living with IBD is so important.
IBD patient risk tool declared winner in communications awards
IBD Registry has won the Agility and Flexibility Award in the 2021 Healthcare Communications Communiqué Awards, for its COVID-19 Patient Risk Tool for people with IBD. A team of clinical, patient, technical and communications experts came together and in just eight d...
Drive your innovation: virtual workshop for SMEs in IBD field
Thank you to everyone who attended our event on September 27 2021. For anyone who missed it we'll be sharing the highlights here soon; keep checking back for updates!
Virtual socials for IBD patients in October
Are you living with Crohn's or Colitis and wish to chat to others who may be going through similar experiences? Crohn's & Colitis UK is offering people the chance to join a virtual social event with others in October. The event will be a chance to share experiences a...